CF Spouses: Zack and Farrel both have CF
People getting married who have CF. We don’t hear it happening very often. We’ve always been told that people with CF should not be in the same room, unless they are 6 feet apart. This is impossible...
6 Mar 202343min
CF conversations held by a Michigan CF clinic!
Does your CF clinic offer a place for you to express your concerns and successes about CF? The University of Michigan Medical Center started a zoom program during the pandemic that allowed its adult ...
27 Feb 202329min
CF Bridge of Hope
Imagine having children with CF and living in another country. In your country they don't have any CF medications, and maybe only a handful of people have been diagnosed with the disease. Even testi...
20 Feb 202339min
Indubious
Indubious. Live Indubiously. Indubians. What am I talking about? The band Indubious was founded by two brothers, 38 years old Evan Burton and 41 year old Skip Burton. Both happen to have CF. They r...
13 Feb 202341min
CF Warrior Project: Andy Lipman
Almost everyone in the CF community knows who Andy Lipman is and all the contributions he has made. Andy, and his older sister Wendy were born with cystic fibrosis. Wendy died when she was only 16 da...
6 Feb 202336min
CF in Thailand: one on one with Dr. Haruthai Kamalaporn
Dr. Harutai Kamalaporn sees 12 of the 30 patients diagnosed with CF in Thailand. The challenges she faces are: lack of medications, equipment and sweat chloride tests at all three hospitals. Dr. Kam...
30 Jan 202330min
GPS Vertex program: explained
If you are taking one of Vertex’s medications, you may be aware that the GPS program at Vertex recently made changes to its co-pay assistance program. In September of 2022, a patient advocate at Verte...
23 Jan 202335min
Cure Found MSU - Pre-medical students changing the World
19 year old Atef Choudhury and 18 year old Naim Mashni are both sophomores at MSU, and they have found their voice. Atef has a nephew with CF and that is what made him want to start to raise awarenes...
16 Jan 202321min
