Living With Cystic Fibrosis

Living With Cystic Fibrosis

Living with cystic fibrosis: the challenges and triumphs along the way. Live-Breathe-Inspire

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Episoder(211)

Musician, Influencer, and Business Architect Marc Cotterill

Musician, Influencer, and Business Architect Marc Cotterill

Marc Cotterill is a CF rock star if you ask me.  He is from the United Kingdom, and has cystic fibrosis. Marc recently turned 40 years old. I love his Instagram presence because he is wonderfully dire...

9 Mai 202251min

CF pioneer, program coordinator, Dee Aquazzino

CF pioneer, program coordinator, Dee Aquazzino

To honor pioneers in CF during May, CF Awareness Month we are showcasing this pioneer.  Dee Acquazzino was Pediatric Clinic Program Coordinator for 44 years as the CF at the Nebraska Regional CF Cente...

2 Mai 202251min

Ukraine refugee and CF Mom Kateryna Koval's story

Ukraine refugee and CF Mom Kateryna Koval's story

This is the story of one Ukraine family escaping war to save their daughter Anna, who has CF.  Kateryna, husband Andrew and 4 year old daughter Anna were awakened by the sounds of bombing at 5:00am in...

28 Mar 202244min

Dr. Ryan Thomas

Dr. Ryan Thomas

We’re honored to talk with Dr. Ryan Thomas on this podcast.  Dr. Thomas is one of the Bonnell Foundations Advisory Council members. A Grosse Pointe native, Dr. Thomas is a wealth of information.  A Mi...

21 Mar 202237min

Salt in My Soul

Salt in My Soul

Mallory Smiths book, Salt in my Soul was published posthumously by her mother, Diane Shader Smith (husband Mark) after she died from CF at the age of 25 years old.  Smith died after a double lung tran...

7 Mar 202255min

Author Bijal Trivedi

Author Bijal Trivedi

Bijal Trivedi is a journalist and an author. She spent 8 years writing the book, Breath from Salt.  It's an in-depth look at how parents with CF children banded together to start what is now the Cysti...

28 Feb 202255min

CF Mom and Plus Size QVC model Rebekah Farley talks CF

CF Mom and Plus Size QVC model Rebekah Farley talks CF

Rebekah Farley is someone you may know from Instagram or the QVC channel where she is a Plus size model. Rebekah and her husband Craig,have a 6 year old daughter Madelynn with cystic fibrosis and a so...

14 Feb 202240min

Gunnar Esiason

Gunnar Esiason

Gunna Esiason is 30 years old and is living with cystic fibrosis. He inspires his peers in the CF community every single day. If you have seen Gunnar’s blog, follow him on twitter, listened to his pod...

31 Jan 202236min

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