Living With Cystic Fibrosis

Living With Cystic Fibrosis

Living with cystic fibrosis: the challenges and triumphs along the way. Live-Breathe-Inspire

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Episoder(211)

Future CF pulmonologists (thanks to a BF grant).

Future CF pulmonologists (thanks to a BF grant).

The future of CF pulmonologists! We all can play a role.Thanks to the generosity of SPARK Healthcare, Biophyiscs Corp. Drs. Susan Millard and Ahmet Uluer, (along with help from the Bonnell Foundation)...

24 Jan 202233min

Brett Bowman and Mom Kim talk transplant, blindness and Legacy.

Brett Bowman and Mom Kim talk transplant, blindness and Legacy.

Kim Bowman, and her husband Brian are two of the strongest people I know.  Kim and I have been friends for a long time.  We both had two children with cystic fibrosis…she had two boys, (Blake and Bret...

17 Jan 202236min

Dr. Heather Walter talks about CF and Post Traumatic Stress

Dr. Heather Walter talks about CF and Post Traumatic Stress

Dr. Heather Walter is a CF Mom.  I first heard Heather speak at a Mom's retreat in 2021 (via zoom). I was so impressed with her I asked her to speak on this podcast.She is the Director of the School o...

10 Jan 202253min

A transplant in the pandemic (for her son), Joan Galinkin 's story

A transplant in the pandemic (for her son), Joan Galinkin 's story

Joan Galinken is a CF Mom who lives in New Jersey.  Her son Jesse is 33 years old, married and a new father. It's been a long road of ups and downs like the CF journey always is.  In the height of the...

3 Jan 202232min

Steven Strickland, new lease on life!

Steven Strickland, new lease on life!

Steven Strickland is 28 years old and he's dealt with his own mortality more than he'd like. He was hoping to get a double lung transplant, but had to get rid of a deadly bacteria first (not once but ...

29 Nov 202139min

Mums to Moms 2

Mums to Moms 2

61 year old Lorna McEwan lives in Saskatchewan, Canada where she is the oldest person living with cystic fibrosis.  She's a well known advocate, working to help CF families.  She lost two brothers to ...

22 Nov 202141min

Nutrition with MIchele Ciancimino, not mainstream high fat diet!

Nutrition with MIchele Ciancimino, not mainstream high fat diet!

Michele Ciancimino is an Integrative Nutrition Certified Holistic Health Coach. Michele provides coaching and support to individuals dealing with Cystic Fibrosis to help them successfully implement th...

25 Okt 202130min

Kate Bryan of 1 Girl Revolution

Kate Bryan of 1 Girl Revolution

How I met Kate Bryan, the 1 Girl Revolution.    A mutual friend told Kate about me and The Bonnell Foundation.  I was still a news reporter at WWJ, and working on my Foundation.  Kate came to my house...

18 Okt 20211h 2min

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