Living With Cystic Fibrosis

Living With Cystic Fibrosis

Living with cystic fibrosis: the challenges and triumphs along the way. Live-Breathe-Inspire

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Episoder(209)

Men with CF and Infertility: The Science, The Options, The Hope.

Men with CF and Infertility: The Science, The Options, The Hope.

Men with CF and Infertility: The Science, The Options, The Hope. Pete Proimos is an entrepreneur, a chronic illness advocate, and the founder of the Filotimo Foundation, a nonprofit dedicated to suppo...

6 Apr 49min

Hope for the final ten percent, Dr. Alan Cohen, Arcturus

Hope for the final ten percent, Dr. Alan Cohen, Arcturus

Three decades caring for patients with CF, that’s Dr. Alan H. Cohen. His experience continues to shape everything he does today. As a pediatric pulmonologist (board-certified) , he has walked alongsid...

30 Mar 48min

Spreading Joy in a Small World: Julie McCaffrey’s Story

Spreading Joy in a Small World: Julie McCaffrey’s Story

I’ve known Julie McCaffrey for years. She lives about 40 minutes from me, in Romeo, Michigan. Julie and her husband, Curtis, are raising four daughters, and their oldest, Jenna—now 20—lives with cysti...

23 Mar 28min

Making medical moments less scary thanks to Abby Rose (Child Life Specialist)

Making medical moments less scary thanks to Abby Rose (Child Life Specialist)

“What if a blood draw didn’t have to feel terrifying, Abby Rose is a child life specialist. And if you have never taken advantage of all they have to offer when your child is hospitalized, you’re goin...

16 Mar 42min

Diagnosed at 50: When Answers Come Decades Late, Sheri Boyd

Diagnosed at 50: When Answers Come Decades Late, Sheri Boyd

Diagnosed with cystic fibrosis at the age of fifty, Sheri Boyd brings a rare and powerful perspective to the CF community, one shaped by decades of undiagnosed illness, years of caregiving, deep resil...

9 Mar 45min

"Patients are waiting." Steve St. Onge with Clarameytx

"Patients are waiting." Steve St. Onge with Clarameytx

“Patients are waiting…”Those simple but profound words from Dr. Steve St. Onge set the tone for this conversation, and for why this work matters so deeply.Science has always fascinated me. I often jok...

2 Mar 31min

"Ever moment, every day is worth celebrating." Somer Love

"Ever moment, every day is worth celebrating." Somer Love

"Ever moment, every day is worth celebrating." Somer LoveSomer Love has spent her life choosing hope, dreaming big, and showing up fully for each day. Diagnosed with cystic fibrosis at just 11 months ...

23 Feb 45min

When Insurance Gets Between Doctors and Patients

When Insurance Gets Between Doctors and Patients

When Insurance Gets Between Doctors and PatientsDr. Elizabeth Ames and Dr. Caleb Bupp are deeply committed to their patients. But like so many clinicians today, they’re spending an extraordinary amoun...

16 Feb 44min

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