Fibrous Dysplasia
This week's episode discusses a rare condition that turns bone into fibrous tissue. Fibrous Dysplasia can be devastating, but our guest, Brittany is taking it all in stride and is continuing her advo...
15 Jun 202118min
EDS Ehlers Danlos Syndrome
On this week's show we are speaking with Kristine Hoestermann, the founder of "FindYourRare" and she will be explaining how she was diagnosed with HEDS and where that diagnosis took her! Heeeeere's K...
8 Jun 202140min
Food Allergies
Food allergy is an immune system reaction that occurs soon after eating a certain food. Even a tiny amount of the allergy-causing food can trigger signs and symptoms such as digestive problems, hives ...
1 Jun 202130min
Stroke Awareness
This week we will be discussing stroke awareness. More than 800,000 strokes happen each year in the United States. Stroke is the fifth leading cause of death in the U.S. and is a major cause of serio...
25 Mai 202114min
hypothalamic obesity
Dr. Eugenie Hsu is a clinical psychologist by profession and lives in the San Francisco Bay Area with her husband and two children. In 2011 when her son was 8, he was diagnosed and treated for a crani...
18 Mai 20211h 11min
Fabry's Lysosomal Storage Disease
Brandi McAlexander was born and raised in Kirtland, New Mexico, a small town ten miles from the Navajo Native American Reservation. She is both Oglala Sioux and White Stick Creek. She is happily marr...
11 Mai 202132min
CVID Common Variable Immunodeficiency
Today, we have with us today, Sheila Ames a registered nurse in Northern California who has been diagnosed with a rare type of a primary immunodeficiency known as common variable immunodeficiency or C...
4 Mai 202131min
Sturge Weber Syndrome
A mother of two from Alberta, Canada, Chelsey Peat was born with a rare condition called Sturge Weber Syndrome. She was born with a large portwine stain birthmark on the left side of her face and has ...
27 Apr 202122min
