Sarcoidosis
In this episode we will discuss Sarcoidosis with Frank Rivera. Frank is the Founder and President of Sarcoidosis of Long Island, is a WEGO Health Patient Leader, a Patient Ambassador at Illumina Inc,...
20 Apr 202127min
Organ Donation
Every day, gifts from donors restore health to save and improve lives. As of 2019, 165 million people in the U.S. have registered as donors, but we all need to sign up. There are still men, wome...
13 Apr 202119min
Tinnitus
Do you hear a constant sound in your ears, even though there is no external source linked to the noise? If so, you're likely suffering from tinnitus, and you aren't alone. It's estimated that more tha...
6 Apr 202119min
von Hippel-Lindau Chuvash Polycythemia
Our guest this week is Shannon Wyatt. Shannon has an extremely rare condition called von Hippel-Lindau Chuvash Polycythemia (we will abbreviate to VHL). Her only symptom that led to finding VHL was ...
30 Mar 202143min
Bleeding Disorders
Bleeding Disorders, also known as Hemophilia, von Willebrand Disease, Coagulation Disorders, Blood Clotting Disorders, Clotting Factor Deficiencies Bleeding disorders are rare disorders affecting the...
23 Mar 20219min
Trisomy
Trisomy is an abnormality in which an organism has the wrong number of chromosomes. In humans, a normal baby will have 46 chromosomes in 23 pairs, with each parent contributing 23 chromosomes. When tr...
16 Mar 202112min
Lysosomal Storage Disease
Lauren, is here speaking with us today about Lysosomal Storage Disease. Lauren has four siblings whom she loves dearly, and graduated in 2011. She worked at a community center until COVID put a hold...
9 Mar 202124min
Muscular Dystrophy
This week we are speaking with a Muscular Dystrophy Warrior! Keisha Greaves is a motivational speaker, the founder of Girls Chronically Rock, and the Massachusetts State Ambassador for the Muscular...
2 Mar 202129min
