3 Faces Of Ataxia
3 Faces of #Ataxia #kNOwATAXIA Are you Ataxia aware? send in your photo to AtaxiaFacts@msn.com
3 Sep 20192min
Cameryn Cobb An inspirational young advocate for Ataxia
I want to introduce you to Cameryn Cobb An inspirational young advocate for Ataxia. Listen in as Cameryn shares her story and what she is doing to make a difference. MINDlink Foundation Rhode Island A...
5 Mai 20198min
Lauren Sormani An inspirational young advocate for Ataxia a Rare Disease
Hi #kNOwATAXIA Nation. On this #thoughtfultuesday I want to introduce you to Lauren Sormani. An inspirational young advocate for Ataxia. Listen in as Lauren shares her story and what she is doing t...
23 Apr 20198min
Expanded analysis of their data from their first clinical trial of troriluzole in SCA patients.
This Podcast from the annual NAF Meeting in Las Vegas, March, 2019 features Gil L’Italien, PhD, Head of GHEOR and Epidemiology and Melissa Wolfe Beiner, MD, Director of Research and Development and At...
14 Apr 201923min
Andrew Rosen Announced as Executive Director For National Ataxia Foundation
Andrew Rosen Announced as Executive Director #kNOwATAXIA "I am honored to be joining the strong team at NAF, and look forward to building on the work that has impacted so many people with Ataxia since...
10 Apr 20198min
#26 Kyle Bryant: Shifting Into High Gear at #2019AAC
Hi #kNOwATAXIA Nation! Happy #thoughtfultuesday. Today, I’m sharing a podcast I did with my good friend Kyle Bryant. I was able to get a few minutes with him in Las Vegas at the Annual Ataxia Conferen...
10 Apr 201924min
Joel Sutherland, the Development Director for the National Ataxia Foundation
Hi kNOwATAXIA Nation - In this podcast I introduce you to Joel Sutherland, the Development Director for the National Ataxia Foundation. Joel explains his role at the foundation and provides updates o...
23 Jan 201910min
Ataxian preps for the holidays
How an Ataxian preps for the holidays and finds the joy in the season. iTunes https://itunes.apple.com/us/podcast/k... SoundCloud https://soundcloud.com/user-536040137... Facebook https://www.facebook...
12 Jan 201911min
