Ataxia, Did You Know?

Ataxia, Did You Know?

Curious, knowledgeable wife of an Ataxian. My mission is to share reputable Ataxia information in short, simple, digestible servings. I want the world to become acquainted with Ataxia and the way it robs someone of their balance, coordination, ability to walk, talk, swallow, and see.

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Episoder(55)

Joint Mission Bataan

Joint Mission Bataan

Bataan Memorial Death March. Ed and Mike have been battling #Ataxia and are now taking on another great challenge with the March. Right now is your opportunity to support them too! Be a part of the Jo...

12 Jan 201911min

Dr. Schmahmann and Melissa Biener sit down with Did You Know to talk ATAXIA. Part 1

Dr. Schmahmann and Melissa Biener sit down with Did You Know to talk ATAXIA. Part 1

PART 1 of 2 Dr. Schmahmann and Melissa Biener sit down with Did You Know to talk ATAXIA. WE NEED YOU!! You play a pivotal role in Ataxia research! Without your input advances can not be made. List...

17 Sep 201814min

You signed up for the Sanford Cords registry yet?

You signed up for the Sanford Cords registry yet?

You signed up for the Sanford Cords registry yet? What are you waiting for ? Listen in to my conversation with Austin letchur from CORDs. Will answer some of the most common questions in signing up fo...

14 Sep 201831min

Azorean Pride Team raises funds and awareness of SCA3( Machado-Joseph Disease)

Azorean Pride Team raises funds and awareness of SCA3( Machado-Joseph Disease)

Thank You Nelia Aguiar and family Azorean Pride Team raises funds and awareness of SCA3( Machado-Joseph Disease) a hereditary type of Ataxia in people of Portuguese descent. Did You Know, Dana Mauro, ...

12 Sep 201812min

Kara Eichelraut - patient advocate for Reata Pharmaceutical

Kara Eichelraut - patient advocate for Reata Pharmaceutical

Listen in as Kara Eichelraut explains to Dana Mauro about the value of Reata Pharmaceutical companies interacting with patients. iTunes https://itunes.apple.com/us/podcast/know-ataxia-ataxia/id1312495...

18 Mai 201810min

Cory Hannan explains the life of an Ataxian in Latin America with Dana Mauro

Cory Hannan explains the life of an Ataxian in Latin America with Dana Mauro

Ataxia impacts people across the globe. Ever wonder what it would be like to have ataxia and live outside of the United States. Listen in as Cory Hannan explains the life of an Ataxian in Latin Amer...

24 Apr 201831min

Up close and personal with @KyleaBryant

Up close and personal with @KyleaBryant

Dana Mauro Up close and personal with @KyleaBryant. Learn about what Kyle's been up to, the inspiration behind his newly released movie the Ataxian, his mission to raise awareness and his personal at...

22 Apr 201829min

Do you know what Schmahmann’s syndrome is?

Do you know what Schmahmann’s syndrome is?

Do you know what Schmahmann’s syndrome is? It can affect someone with Ataxia. Listen in to learn more with Dana Mauro iTunes https://itunes.apple.com/us/podcast/know-ataxia-ataxia/id1312495222?mt So...

16 Apr 201816min

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