Ataxia, Did You Know?

Ataxia, Did You Know?

Curious, knowledgeable wife of an Ataxian. My mission is to share reputable Ataxia information in short, simple, digestible servings. I want the world to become acquainted with Ataxia and the way it robs someone of their balance, coordination, ability to walk, talk, swallow, and see.

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Episoder(55)

Ataxia Suport Groups  They get me !

Ataxia Suport Groups They get me !

Curious, knowledgeable wife of an Ataxian. My mission is to share reputable Ataxia information in short, simple, digestible servings. I want the world to become acquainted with Ataxia and the way it r...

2 Mar 20186min

Did You Know Suport Groups are extended family and friends

Did You Know Suport Groups are extended family and friends

Dana Mauro: Talks about the importance of a good support system.

23 Nov 20175min

Did You Know about research

Did You Know about research

Research is at a pivotal time for Ataxia – with one medication in clinical trial and more in the pipeline. We received 84 applications for Ataxia research grants this year! Work with us to get as many...

23 Nov 20171min

Did You Know ? National Ataxia Foundation believes that this type

Did You Know ? National Ataxia Foundation believes that this type

Dana Mauro talks about: National Ataxia Foundation believes that this type of request for study subjects will be made in the future for many, and hopefully, all forms of ataxia

16 Nov 20176min

Did You Know? invisible aspects of Ataxia

Did You Know? invisible aspects of Ataxia

what comes to mind when you think of the invisible aspects of Ataxia: Fatigue Guilt Difficulty maintaining relationships Difficulty multitasking and keeping track of things Emotions Overstimulation Fa...

20 Sep 201721min

Did You Know ? Annual Ataxia Conference (005)

Did You Know ? Annual Ataxia Conference (005)

Did You Know ? Annual Ataxia Conference (005) NAF coordinates the world’s largest annual Ataxia gathering – the Annual Ataxia Conference (AAC). For three days, conference attendees meet and learn from...

12 Sep 20176min

Did You Know Podcast - Episode One

Did You Know Podcast - Episode One

What is Ataxia? Did you know this? This is an Ataxia Awareness campaign. Please tune in daily for a new fact to share with friends and family.

31 Aug 20174min

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